a children's hospice at home nurse

Children's Hospice at Home 

Rennie Grove’s Children’s Hospice at Home service cares for babies, children and young people up to the age of 19 living with a life-limiting condition in west Herts and Bucks. The Children’s service gives flexible care tailored to each family’s needs to help the children and their families enjoy the best quality of life possible and make every moment together matter.

The specialist children’s nurses in the team work closely with the children’s community nurses to manage, co-ordinate and deliver care and ensure the needs and wishes of the children and their families are met. They carry out scheduled home visits to monitor the children’s conditions and liaise with other healthcare professionals to ensure any changes are treated quickly and appropriately. They help plan ahead for future needs and support parents to cope with their child’s medical care at home. The nurses provide advice and support and emergency visits, if needed, during extended hours from 8am to 8pm, Monday to Friday and 24 hours over the weekend and bank holidays.   

Helping families to make the most of being together is an important part of the service. Play specialists offer support on ways to play and have fun, and group and social activities, including days out, all focus on making precious moments that will be remembered forever. The team also offers short respite breaks with healthcare assistants taking over the role of carer to allow parents some time to themselves or to spend with other children or family members.

 And when the time comes, we ensure that every child and family has the choice to receive specialist end-of-life care at home, putting in place 24 hour on-call support as needed so families never feel alone. 

This care for children is provided at no cost to the families and is made possible by our funding partnership with The Pepper Foundation and generous donations from our local community. 

 

How do I access the Children's Hospice at Home service?

You can either ask your GP or children's community nurse to refer your child to Rennie Grove Children's Hospice at Home, or you can self-refer to us directly.  To self-refer, simply download a self-referral form here and return it by post or email using the contact details provided.  If you would like more information first, you can make a general enquiry by emailing help@renniegrove.org.


The Rennie Grove Hospice Care Children's Hospice at Home Service is also supported by The Pepper Foundation which raises funds specifically to support the care provided by the Rennie Grove children's team.  Find out more about The Pepper Foundation.