COVID-19 Resources - for palliative and end of life care

Here at Rennie Grove Hospice Care, We want to help you to access the range of resources that are being created nationally and locally to support those caring for people with COVID-19 at the end of life.

PLEASE NOTE: this page contains links that lead to other websites. You should always read their privacy and cookie policies to ensure your safety on their site.  

We hope that you find these helpful to support you in your practice.

This selection of resources is not exhaustive, and the inclusion of links is not an endorsement.

Webinars and Training

Information about upcoming webinars and training opportunities will be updated regularly. Come back soon.

Coronavirus End of Life Care (e-learning)

There is now a great selection of COVID related palliative care resources on ELFH.

The core content is symptom control, DNACPR and end of life care. Also offers documents and videos to give a really useful set of conversation guides for face to face and telephone.

This service is free to access, and there is no need to register for an account. Please click here to find out more. 

Palliative and End of Life Care Resources

Hospice UK COVID-19 Resources

Hospice UK gather up to date national guidance on COVID-19, which is available on their website here.

End of life studies; Palliative Care and COVID-19

Professor David Clark, Dr Marian Krawzyck, Dr Naomi Richards, Dr Sandy Whitelaw, Anthony Bell – all members of the Glasgow End of Life Studies Group – share some recent insights on the role of palliative care in a pandemic. Read it here.

COVID-19 and Palliative, End of Life and Bereavement Care in Secondary Care Role of the specialty and guidance to aid care

Guidance from APM on how palliative and end of life care can contribute knowledge and skills in responding to COVID-19.

NICE Guidance COVID-19 rapid guideline: managing symptoms (including at the end of life) in the community. The purpose of this guideline is to provide recommendations for managing COVID‑19 symptoms for patients in the community, including at the end of life. It also includes recommendations about managing medicines for these patients, and protecting staff from infection.

Advance Care planning template and guidance

My COVID-19 Advance Care Plan’ - publication from NHS England.

APM COVID-19 EOL and Bereavement Care

This guidance, which is been prepared for secondary care initially and is not intended to be comprehensive, has been prepared and collated locally by the Northern Care Alliance NHS Group and the Association for Palliative Medicine of Great Britain and Ireland. While it is not nationally endorsed by the National Health Service, it may be useful to colleagues throughout the country when preparing their own guidance.

Community Palliative, End of Life and Bereavement Care in the COVID-19 pandemic

A guide to End of Life Care symptom control when a person is dying from COVID19 care for General Practice Teams,  prepared by the Royal College of General Practitioners  and the Association for Palliative Medicine.

Bereavement Resources

Resources to support the bereaved and those providing care and support to people bereaved by COVID-19

Cruse Bereavement Care

Cruse Bereavement Care is the largest bereavement charity in England, Wales and Northern Ireland. It provides support, information and advice for adults, children and young people when someone they loved dies. They are continuing to be there for bereaved people during the COVID-19 outbreak, and are also preparing for a huge uptake in demand.

Due to the COVID-19 outbreak, Cruse branches across the country are currently only offering telephone and online support.

People can also access instant support via the Freephone National Helpline. It is open on weekdays from 09:30 to 17:00 and until 20:00 on Tuesdays, Wednesdays and Thursdays. The number is 0808 808 1677. More information can also be found at www.cruse.org.uk.

Information about grief and bereavement during the coronavirus can be found on the Cruse Bereavement Care website.

Public Health England COVID-19 bereavement resources

These booklets provide advice for people who have experienced a bereavement during the COVID-19 pandemic period. The first two booklets offer advice on dealing with grief and bereavement, and practical advice on dealing with those aspects of a death that may be different during the pandemic period. They were produced by consultant clinical psychologists in conjunction with the Department of Health Regional Bereavement Coordinators Network. The third booklet deals with helping children to cope with the death of a loved one, and was prepared by Psychological Services at the Belfast Health and Social Care Trust. 

Accessible Resources

Links to accessibility resources to help you communicate about COVID-19 in easy read and translated formats:

Books beyond words: Coronavirus

Free to download, A short wordless story, that will help people to understand what to do if you have Coronavirus and how to keep yourself and those who you care about safe.

The story also shows how to safely help others who may be self-isolating.

Supplementary text at the end of the story gives information on where people can seek help if they are unwell and signposts to other useful resources.

Resources for those working with children and young people

Child Mind share some tips on talking to children about the coronavirus,

Kids Health share advice on how to talk to your child about COVID-19,

Child Bereavement UK share resources on how to support bereaved children,

Winston’s Wish resources about supporting children with SEND who experience bereavement,

Winston’s Wish share advice about alternative goodbyes for children and families when funeral attendance isn’t possible

Mencap offer Easy read information on COVID-19 

Coronavirus – illustrated book for children

Illustrated by Axel Scheffler (The Gruffalo) these familiar images are accompanied by simple words to explain coronavirus to children.

Additional resources for Care Homes in Buckinghamshire

Resources from British Geriatrics Society, practical guidance for care homes

Managing COVID-19 in care homes

Running a medicines re-use scheme in care homes and hospices
Published 28 April 2020

Bucks palliation and EOLC in Covid 19 patients

Additional resources for Care Homes in Hertfordshire

Resources from British Geriatrics Society, practical guidance for care homes

Managing COVID-19 in care homes

Running a medicines re-use scheme in care homes and hospices
Published 28 April 2020

Last Updated: 13 May 2020